Tag: ClinicalTrials.gov

ClinicalTrials.gov Modernization Public Meeting

ClinicalTrials.gov Modernization Public Meeting

Join us virtually on April 25 at 12:30 p.m.

Want to learn more about the upcoming changes to the ClinicalTrials.gov website and the new Protocol Registration and Results System (PRS)? We’re hosting a virtual public meeting on Tuesday, April 25 from 12:30 p.m. to 3 p.m. ET to provide a detailed look at the current beta sites and share our overall progress on modernization.  

Register Now 

This meeting is part of an effort by the National Library of Medicine (NLM) to keep stakeholders and the public informed about the ClinicalTrials.gov modernization, which seeks to deliver an improved user experience on an updated platform that will accommodate growth and enhance efficiency. During the meeting, you will have the opportunity to hear from and interact with modernization team members and other stakeholders. Please register using the link above. 

Meeting Agenda 

ClinicalTrials.gov modernization team members and members of the NLM Board of Regents Public Service Working Group on ClinicalTrials.gov Modernization will engage with attendees in relation to the following:  

  • How We Got Here: A Summary of Our User-Centered Process for the Design and Development of the ClinicalTrials.gov Website 
  • Get to Know ClinicalTrials.gov Beta and PRS Beta 
  • Breakout Rooms for ClinicalTrials.gov Beta and PRS Beta (attendees may join one)  

Who Should Attend 

The meeting is open to the public. We particularly aim to reach study sponsors and investigators who submit clinical trial information using the PRS. In addition, we hope to reach ClinicalTrials.gov public website users, including patients, families, health care providers, academics, industry representatives, members of nonprofit and advocacy organizations, staff of government agencies, and data researchers.  

The meeting will be recorded, and the recording and presentation slides will be available on the ClinicalTrials.gov Modernization webpage after the meeting.

Stay Up to Date 

Follow us on Twitter @NCBI and join our mailing list to stay up to date on ClinicalTrials.gov and other NCBI news.   

Using NCBI resources to research, detect, and treat genetic phenotypes

Using NCBI resources to research, detect, and treat genetic phenotypes

Clinical Genetics Information at Your Fingertips

NCBI offers a portfolio of medical genetics resources to help you research, diagnose, and treat diseases and conditions. You can easily access our data and tools through the Medical Genetics and Human Variation page of the NCBI website. We also encourage you to join our community of thousands of submitters and share your germline and/or somatic data to advance discovery and optimize clinical care. 

How and why should you use our resources? Consider the example below. 

Your patient is a 40-year-old mother of two presenting with changes in bathroom habits, bleeding, and belly pain. She has a medical history of colonic polyps. Her family history reveals that her maternal grandmother, mother and uncle had several forms of cancers including colon, breast, and endometrium. 

Continue reading “Using NCBI resources to research, detect, and treat genetic phenotypes”

ClinicalTrials.gov updates the PRS Guided Tutorials, step-by-step instructions for data providers

The PRS Guided Tutorials provide step-by-step instructions to help data providers submit information to ClinicalTrials.gov and aims to reduce the number of quality-control reviews needed. The ClinicalTrials.gov team has updated the PRS Guided Tutorials to make them more useful in response to user feedback obtained through focus groups and survey responses over the past year.

Continue reading “ClinicalTrials.gov updates the PRS Guided Tutorials, step-by-step instructions for data providers”

May 2 webinar: Using NCBI’s MedGen in Clinical Practice

May 2 webinar: Using NCBI’s MedGen in Clinical Practice

Join us next Wednesday, May 2, 2018, 12:00 PM – 12:30 PM EDT for a webinar on MedGen, NCBI’s portal to clinical genetics. We’ll show you how to find information in MedGen on genetic phenotypes, clinical features of disorders, and more. You’ll also learn how to retrieve actionable information such as practice guidelines for a condition and get a list of available genetic tests in GTR, and how to easily access resources like GeneReviews, OMIM and ClinicalTrials.gov, the Genetic and Rare Diseases Information Center, and Medline Plus.

After registering, you will receive a confirmation email with information about attending the webinar. A few days after the live presentation, you can view the recording on the NCBI YouTube channel. You can learn about future webinars on the Webinars and Courses page.